Today we met with Dr. Fleishman for our monthly check up. Emerson is now weighing 14pounds 3 ounces and is 25 inches long! Emerson is not allowing Down Syndrome to keep her from growing (the average female adult with DS is 4 feet 11 inches tall)!! Dr. Fleishman was again very pleased with her saturation levels, weight gain, and the sound of her heart.
There is a slight change in our "plan" to move forward......
Dr. Fleishman spoke with the Pediatric Surgeon, Dr. DeCampli, about Emerson's situation. They are both in agreement that we need to perform the surgery before the 7th month mark. Dr. Fleishman explained to us that they don't want the muscle tissue to thicken much more. The more that it thickens, the more they will need to hollow out.
Emerson has a sedated Echocadiogram scheduled for March 24th. They are putting her under sedation just so they can get a good read without her squirming around. This will be the last appointment before the surgery to ask any questions or discuss concerns. The surgery date will be determined next week but they are looking at the beginning of April. Emerson will most likely be 6 1/2 months old when the surgery takes place. I will post the date of the surgery as soon as we find out!
Thanks for all your thoughts and prayers!
4 comments:
She is too cute!
You have my prayers and I know that Emerson will come through this with flying colors!
Wow, look how tall she has grown!
Emerson is always in my prayers.
Wow, the 24th is my birthday... Now I have something great to wish/pray for on my birthday candles.
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